All our accommodating advice bedding accept accustomed ethical approval and were developed with abutment from with the CFS/ME Accommodating Advisory Group (PAG). The advice bedding accept been advised with the patient’s age in apperception and as such we accept three altered versions which can be beheld below:
Patient Advice Bedding for Participants Aged 8- 11 Years of Age PIS 8-11 (PDF, 270kB)
Patient Advice Bedding for Participants Aged 12- 17 Years of Age PIS 12-17 (PDF, 354kB)
Parent/ Carer Advice Sheet PIS parent/ about (PDF, 376kB)
In band with ethical advice all our participants will accommodate absolutely a and autonomous accounting accord and all our forms accept accustomed ethical approval. We will ensure that both parents and adolescent bodies are blessed to booty part. Accord is an advancing action and throughout the abstraction we will abide to accomplish abiding that participants are blessed to participate. Participants are chargeless to abjure at any time.
Participants accommodate academic accounting accord at a cardinal of stages during the study.
Firstly participants are accustomed advice at their antecedent analytic appointment. They are provided with an advice area and are asked if the would like to apprentice added about the study. If they ambition to be provided with added advice both the adolescent and ancestor complete a anatomy gibing accord to accept added acquaintance with the analysis team. At this point they are artlessly acknowledging to apprehend added information, not giving abounding accord to participation.
Assent to Acquaintance Anatomy for Adolescent Bodies Aged 8- 15 years of age: 8-15 Accord (PDF, 101kB)
Consent to Contact Form for Adolescent Bodies Aged 16-17 years of age: 16-17 Accord (PDF, 107kB)16-17 accord (PDF, 159kB)
Consent to Acquaintance Anatomy for Parents/Carers: Parent/Carer Accord (PDF, 102kB)
Those participants acknowledging to accretion added advice will be contacted by a agents affiliate from the analysis team. The researcher will action added advice and ask any questions that the actor and their ancestors may have. If the actor and the participant’s ancestors are still accommodating to participate, again we will ask them to complete a abounding accord form.
Consent to Abstraction Form for Adolescent Bodies Aged 8- 15 years of age: 8-15 Accord to abstraction (PDF, 99kB)
Consent to Study Form for Adolescent Bodies Aged 16-17 years of age: 16-17 accord (PDF, 159kB)
Consent to Study Form for Parent/ Carer: Parent/Carer Accord (PDF, 156kB)
To analyze our participants adventures of partipanting in this study, we are agreeable a baby sample to backpack out qualitative discussion. We will access accord for this, and the accord forms can be beheld below:
Consent to Audio Almanac Qualitative Interviews Anatomy for Adolescent Bodies Aged 8-15 years of age:Consent to almanac analysis 8-15 (Office document, 138kB)
Consent to Audio Record Qualitative Interviews Anatomy for Adolescent Bodies Aged 16-17 years of age:Consent to almanac analysis 16-17 (Office document, 140kB)
Other actor documents
As allotment of the study, we are application a accessory alleged an accelerometer which admeasurement the participants action levels. We accept developed an advice advertisement for the action device: Accelerometer pdf (PDF, 250kB)
We accept additionally developed an advice area to accommodate added advice about Graded Exercise Therapy: GET Advertisement (PDF, 75kB)
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