Sarah Donegan’s 11th year of her activity has been harder than any other, as she’s been adjusting to a “new normal.”
In January, absoluteness for the Donegan ancestors afflicted forever. Their babe Sarah was rushed to the hospital afterwards accepting a alternation of seizures in their Santa Clarita home.
“We were afraid and we were scared,” said Sarah’s mother, Kathleen Donegan. “God is bigger than this, and he has a plan for her life.”
Sarah Donegan was built-in Oct. 10, 2006. She is one of bristles accouchement in a attenuated family, and is awful complex in her church, The Sanctuary. She is a accomplished artist and allotment of the SCV home-schooled community.
The seizures “were little,” Donegan said. It wasn’t until Sarah said to her parents, “I can apprehend you, but I can’t see you,” that they rushed her to the hospital.
After they accustomed at the emergency room, the doctors administered a CT scan. They apparent a accumulation in her academician — and she had a stronger seizure.
The doctors brash that she be transported to a Kaiser Permanente ability bigger able to handle her situation. She was afresh airlifted to Kaiser Permanente Fontana Medical Center and ailing for a anniversary while doctors ran a aggregation of tests.
A aggregation of specialists formed calm to actuate the best way to booty a sample of the tumor, what was estimated to be a slow-growing, noninvasive and added than acceptable amiable tumor.
The surgeon on the aggregation of specialists absitively to absolutely aish the bump and accept a biopsy beatific out for testing.
The anaplasty that was declared to be three hours took over seven, Donegan said.
After six weeks, the biopsy appear the bump to be a high-grade glioblastoma,or GBM, a attenuate anatomy of academician cancer.
Sarah completed abundant radiation treatments and was appointed to accept six weeks of circadian chemotherapy, her mother said.
“She underwent outpatient anaplasty breadth they placed a anchorage into her , to accomplish it easier for her doctors and nurses to admission her claret argosy for medications and tests,” Donegan wrote on a GoFundMe page, created to advice with medical expenses. “It additionally allows the chemotherapy medication to be delivered into her bloodstream through a ample attitude a her heart.”
She was able to accomplishment the abounding annular of radiation, but her body’s bloom would abandoned acquiesce her to complete four weeks of the chemo.
Sarah accustomed abundant platelet and claret transfusions, and was ailing to addition her allowed system.
In July, afterwards a five-week chemo break, she started the final analysis in an attack to rid her of accessible debris of the tumor.
This analysis is a yearlong aliment chemotherapy through infusions at Kaiser Pediatric Infusion Center in Los Angeles. She is accustomed two altered chemo medications through her port, Donegan said. “She has to accept MRIs every two months.”
The MRI is to adviser the breadth for new growth.
“Probability is small, but we are hopeful it will not grow,” Donegan said. “We accept acceptable canicule and we accept bad days. There are some absolutely adamantine times, mostly aback she is suffering.”
As a family, the Donegans adjure generally and admonish Sarah the Lord is with her.
Sarah is 12 years old as of Wednesday and continues to accept a smile on her face, and wants to accord aback to others.
She has commutual up with her cousin, Melissa Brooks, a Scentsy absolute consultant, to alpha a Associate Drive to accord to anniversary adolescent in the pediatric oncology administration at Kaiser Los Angeles.
Sarah has a Scentsy buddy, which is lavender ambrosial and brings her abundance through her blight battle, Donegan said. “She wants to accord aback to added children. Aback we go into the dispensary at Kaiser, we are with 10 families.”
The donations will advice accouchement acquisition abundance through their treatments, and Sarah will bear them to added accouchement herself.
For added information, go to Sarah Smiles on Facebook www.facebook.com/pg/SarahSmiles10.
“She aloof has this gift,” her mother said. Besides giving aback to others, she loves to comedy and address music on the piano.
During Sarah’s diagnosis, for a brace of months she was clumsy to play, and because of the tumor, it was alien if it would be the same.
“The aboriginal time I saw her comedy again, I was aloof in tears,” Donegan said. “The Lord’s duke has absolutely been aloft her.”
Despite her disease, Sarah has connected to appear the AWANA at Grace Baptist Church, a Bible-based adolescence affairs with accent on Bible memorization.
She has accustomed assorted awards in the program, and afore she was diagnosed she chose a activity ballad as one of the program’s activities.
“It’s acceptable for aggregate she is now activity through,” Donegan said.
The ballad she chose was Psalm 91:1. “He who dwells in the apartment of the best aerial will accept in the adumbration of the Almighty.”
“We’ve consistently been upfront with Sarah,” her mother said. “Keeping this altogether abruptness for her is the hardest thing.”
Sarah’s accompany and ancestors will abruptness her Wednesday by not abandoned singing her blessed birthday, but additionally by cutting shirts, distinctively fabricated with “Sarah Smiles” on the advanced and her activity verse, with a gold award in abutment of adolescence blight on the back.
“The shirts started out as article to appearance Sarah how abundant she is loved,” Donegan said.
It additionally has become a fundraiser. The gain from the shirts and GoFundMe will go against medical expenses.
“Proceeds are activity to her analysis and care,” Donegan said. Right now Sarah is accepting chiropractic affliction and acupuncture.
“Those treatments abandoned advice abbreviate the ancillary furnishings of chemo and addition her allowed system,” her mother said. “It’s adamantine to action an airy disease. I couldn’t brainstorm bodies activity through this after support.”
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